Cool Cam.

As Sullivan sweetly sleeps, Cam and I enjoy some mother/son time. Thank you, Cole (wink wink, Molly!), for our new hats!

We had (yet another) doctor appointment today. I think it is important to share our updates so our friends/family can continue to rejoice in how healthy the boys are, and keep praying for continued health.....so, thanks for reading.

Sullivan weighs 5 lbs 15.6 oz (so close buddy!)

Cam weights 7 lbs 7 oz.

Sullivan needs continued prayer for his breathing. We believe he is improving, but it is still a struggle for him. His breathing continues to be more labored than it "should" be, and the doctors assure us that as he continues to grow this will enlarge his airways and his breathing will become easier. He seems to be eating a little better, but the "suck/swallow/breath" notion is a little tough for this little guy.

Additionally, his eyes are not completely done growing. He is considered to have "mild to moderate ROP". If this goes untreated, it could lead to bad things (retinal detachment). Our prayer is that not only does it not need to be treated, but that when we go back next week, he will have moved from a stage 1-2 to a stage 0....no treatment needed!

date night.

We went on a date night and it was fabulous! Of course I missed the boys...but oh this night was well needed and we had a great time.

We enjoyed an evening on the boat followed by some live music at a great burger joint.

Thanks, Chris, for taking me out!

p.s. yep...I even wore something other than sweat and pjs. Woo hoo...it was a fancy night, huh?

Thanks Grandparents for being so wonderful!

bucket list.

The boys really love getting a bath.

And I really love this new website I found where you can edit pictures. It's called picnik. You should check it out. (http://www.picnik.com/).

Being a photographer and speaking spanish are on my bucket list.



Sullivan lookin' sweet and me playing with editing tools.

40 Weeks!

I think the picture speaks for itself...

July 26, 2010.

I would ask for your continued prayer for our little Sullivan. His breathing continues to be very labored which makes feedings very difficult (and being that he eats 8 times a day...that adds up to a lot of minutes/day). We will have further doctor appointments to explore what it could be and/or the best treatment options. I will keep you posted.

Here are a few other shots from the week.

Grandparents taking good care of the boys.

Sweet Sully.

A typical afternoon.

Christmas 2006

Are you curious why this one is here? Well, it's because I had to give a little "dedication" to our sweet dog. She really gave us a good scare the other night. She had a seizure (actually a cluster of them) and ended up spending a little overnight at the emergency vet. She is such a good dog and I really think that she could have done something a little less dramatic if she wanted to get a more attention...ha! So glad you are back home, Zoey!

Grandparents.

I slept last night. I also slept a few weeks ago. How you ask? Because the boys have amazing grandparents!

A little poem I found...I added my own two cents!

Thank you to all of the wonderful grandparents!

Grandparents

Grandparents meet a need

That no one else can fill (especially at 2 am);

They're always kinda and gentle;

they love you and always will.

They have plenty of time to listen.

To encourage and to care;

when others are too busy (sleeping)

Grandparents are always there.

They (will someday) take you special places;

They're never in a hurry

They soothe you when youre troubled

and help you not to worry

They buy you things you want, (don't spoil them too much!)

even things you don't need;

"Do what makes them happy"...

is every grandparents creed.

They focus on the good points,

and overlook each flaw (like how they eat/wake up every 3 hours!);

How could we do without

our Grandma and Grandpa? ....(we couldnt!)

(original written by: Joanna Fuchs)

(I will add some pictures and an update on the boys later today)

A little 3 am action....

So this morning was a long one. We are on the "feed every three hours....or on demand" schedule. Hmn...this is tough...I can't lie! This morning the boys were on pretty opposite schedules. So, as Cam was sound asleep to my left, Sullivan is not really enjoying his diaper change. I had to capture this because his little whimper was being hindered by the fact that he was super hungry and really just couldn't get enough of his paci.

(I couldn't get any footage of Cam because my memory card was full...oops! Time to purge.)

I have to also begin the week with some specific prayer requests....

Please pray for Sully as we continue to be very aware of how much food he eats so that he will continue to grow

...for both babies' air passageways..that they might get bigger so that breathing would be less labored

...for their eyes-that they would begin to (Sully) and continue to (Cam) develop at an appropriate rate.

...for a family that we met in the NICU. Their little girl, Charlotte, had to return to the hospital and is trying to fight infection.

....for milk (had to put this in here...sorry!)

On a Friday night....

life looks a little different with twins.
Here's a glimpse......


I have missed hanging out with my sweet niece. Can't wait to have some "girl time".

Boy the Butler clan has really grown. (p.s. We are missing our favorite two year old in this picture....)

Cam was missing out on the party...sound asleep while Sully was having a good ole time.

Hello bright eyed Sullivan.Grandpa does such a good job taking care of the boys.

I realized that I haven't posted the token "bathtime" pictures. (that might be because we haven't had very many of those....they really exhaust these little guys). But on this special occasion...this was an emergency bath post having a little too much food in our belly.